Eye and Pulmonary appts. 4-29-15

Time for more check-ups...and why not do two at once to save a trip. First up eyes with Dr. Roarty. He is amazing with her! She is maintaining and has a little near nearsightedness in her right? eye but nothing he is worried about. She will possibly need glasses once school becomes more demanding...but for now all is healthy and well.
Pulmonology checked out great too. They checked her breathing and Dr. Abdulhamid..also amazing..noticed right away that she has slight scoliosis which I thought was so amazing. These doctors are brilliant and are just special people! We are so fortunate! Breathing is fine and no worries there. Both appts scheduled in about a year!

med student checking her eyes

med student checking her eyes

stealing gloves...surprise

what gloves?

123 breathe....

what a trooper

Kindergarten Round up 4-20-15

Here we go...here comes Kindergarten! WHAT and WHEN did this happen?!?!?! She was as big and brave as ever! Wade and I took her and she went with someone to get evaluated and she did great! Smarty pants! She is beyond ready....and Mommy is not :(

cardiology 4-17-15

Avery had her follow up yearly visit with the cardiologist(a new one). EKG and Echo were done and both are NORMAL! Her heart was enlarged with the original diagnosis..with treatment it is back to normal and maintaining! Doc said there is no evidence she even has Pompe by looking at her heart. Speaking of hearts..mine hit the floor when I heard that news! Amazing!  It is always a little nerve racking sitting there wondering and hoping everything is ok.

posing with a perfect heart, attitude and her new stroller!

new wheels 4-13-15

new wheels just arrived! LIFE CHANGER!! It's red, big and beautiful....the Kimba Kruze by Ottobok. This stroller was covered by insurance and took forever to get but it was worth every single second of waiting. It's equipped with things to even secure it in a bus if we needed to and will grow with her for several years. I do want to get a sun shade to go with it but that will come with time! .....and it fits like a glove into the back on the mini

delivery and adjustments

beautiful

getting in on her own

perfect

like a glove!!

Chelsea's baby shower 4-11-15

Avery's first home nurse, Chelsea had her baby shower on Saturday. We were all super excited to see Chelsea and we headed two hours north for the shower! It was a lovely shower and Chelsea looked amaz! We are so lucky to have met such an amazing person! Our current nurse, Cortney was there along with her son Hudson. After the shower we hit up #RL690...the old stomping grounds and ran into my dear friend Marcie. We followed lunch up with bring your own container slurpees:) and then a quick stop at my mom and dads. FUN DAY!

Avery, Chelsea(baby Hazel in her belly)Cortney and Mya

Avery and Hudson

Slurpees

Chillin and G and G Meyer's house