Ballerina Avery

Ballerina Avery

Thursday, July 5, 2012

Infusion 30, 7-5-12

Our 2nd home infusion and it went great. We had a little problem at the beginning because Chelsea forgot her stethoscope to check Avery's blood pressure and Wades cuff was too big. So I asked our neighbor Brandy across the street(she is and ER nurse at McLaren in Flint)and she didn't have one either BUT she had a smaller battery operated cuff we used on Avery's leg. It worked out and we got started at 10:35a and were done with the Lumizyme by 2:35. It went really fast today it seemed like. Avery watched tv and ate everything in site like always! She also played nurse with Chelsea...taking her temp and blood pressure etc. That kept her occupied for hours :) Poor Chelsea was probably about to go crazy listening to Barney and Elmo and playing Dr all day..haha! She said she didn't care! Who would I be to argue! All in all another great infusion and another day towards keeping our little beauty, Avery MOVING! This drug is amazing!

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