Infusion 33, 8-16-12

Another great one for Miss A! She is staring to get a little restless right before we start the IV, when I'm holding her and Chelsea is getting ready to go. We used to let her play with my phone and watch a video or something and now she wants nothing to do with it. Thankfully Chelsea rocks at getting it on the first try! Today's IV came out a little and Chelsea managed to get it back in without poking her again..close one! Avery ate like a champ like always during infusion. Before noon she had a donut, milk, water, chips, 2 pieces of pb toast and a banana and still wanted pizza! HAHA! That's my girl! We waited on the pizza til after a short 1 hr nap! Again, the worst part was getting the tape off...she just screams and big tears fall down her face..it crushes me. :(  The infusion seems to go by so fast..like we are forgetting to do something? or..I don't know?..it is over before we know it. We were just so used to the hospital setting and waiting FOREVER..and that is no longer! :) We started to work out a fall schedule but it is a little complicated because Avery will be in school on Thursdays. We want to switch back to our normal Friday but we can only do that every other time because we have to FedEx blood overnight and they don't do weekends. So summed up..we will have to do something besides a Friday every other time at least until this trial is over! I'm not complaining..trust me! This home infusion stuff is amazing. Although we miss our friends at Children's Hospital! http://www.childrensdmc.org/