Infusion 58, 8-1--13, Infusion 59, 8-14-13, Infusion 60 8-29-13 and Infusion 61, 9-11-13

Infusions, INFUSIONS and more infusions! It seems we would get used to this...but we don't. It still stresses me out and I still hate that she has this disease and that this is our only option BUT we do it because we have to just like every other person who has Pompe Disease. AND it is always better than the other option...SO thankful that Avery is in our lives and there is a drug that will save her life! All of her infusions have been smooth sailing except the last one on 9-11..it was a little rough. On 9-11 she had to get two pokes and there were lots of tears:( and for some reason it even hurt her when we took the tape off at the end. Let me just tell you this girl is so tough! I am so proud of her. We are also thankful for Chelsea! our amazing nurse!