Yet another Lumizyme infusion under our belts and Avery is doing great! We did a lot of walking this time and Avery was really good. She had pizza for lunch from Subway and had green(sour cream and onion) chips for a snack along with strawberries, raspberries and yogurt! Yup all that before 1pm! HAHA! 1 more infusion then we might get switched to home infusions..which would be LIFE CHANGING for us! Fingers crossed that Genzyme gets the ball rolling ASAP!
No comments:
Post a Comment