it's been a year? Already!

Wow..it is so hard to believe that we started infusions on May 26, 2011! It has been a year! Avery has improved so much in that time! She now walks, talks, runs a little and is just like most normal 2 year olds! This drug, Myozyme and now Lumizyme has saved her life! Her heart is no longer enlarged and she talks back and has attitude like her big sister Mya! We couldn't be happier! There were times in the past year that we had no clue where we would be or what we would be doing or how she would be doing...and look now! AMAZING! A MIRACLE for sure!