6 month check up for drug study

We are supposed to get a check up every 6 month for the Genzyme, Lumizyme study that Avery is a part of. Well, we were a few months behind our normal 6m schedule but we got it done. She gets an Echo cardiogram, and EKG, blood work, has to give a urine sample and gets a full physical therapy evaluation. It is always a smooth process but takes several hours. We were super pleased with her PT eval...she has grown leaps and bounds since her last check up almost 8 months ago. She can do several of the things she couldn't do then! Way to go!

Getting her EKG done..and yes she is always this still! She is amazing!

Taking a break from the therapy

pt eval

tuckered out after a long day of testing