Diagnosis day 2014

May 16, 2014, diagnosis day. 3 years ago on this day Avery was diagnosed with Pompe disease. We will never forget that day, what we were doing, where we were etc. BUT the day is a complete blur if that makes any sense. Time has just gone by so fast, BUT everyday is the longest day of my life, again, this probably only makes sense to me. We are so very lucky for Avery to be as healthy as she is and as full of life as she is. Avery is doing fantastic and is only getting better with time! It is always a rough day to remember everything we have been through and to know how much more we have to face but every single day we are thankful for it all! We love our little Kay Kay so much and we will do whatever it takes to keep her strong and healthy!