Infusions, Infusions and more infusions! Avery is starting to get grumpy when I tell her we need to get her weight. The pharmacy texts the day before to get her current weight. This is red a flag for Avery and she knows what comes the next day. She is not scared of the poke or anything to do with the infusion, it is more the missing school part. She is devastated she has to miss school and not see her friends:( There really is not much we can do about it. I know she will understand with time. Avery is starting to require more info on why she needs infusions. The basic "to get strong and to be able to walk and do things" just is not cutting it. She realizes that no one else has to get these to be strong or to play or walk etc. That combined with missing school really ticks her off!
The actual infusions have been going well. She just wants to watch movies and eat junk food! Infusion #78 she threw a REALLY long tantrum because I wouldn't let her have a "snack" until she had lunch or fruit or something(she already had one junk treat)So that was ridiculous. It is VERY hard to discipline someone who for sure needs it but it is in her situation, on infusion day, she has an IV in her arm and I would feel like total crap doing anything drastic(like she needed, lol) Oh well, I didn't give in and she finally did what I asked but it made for a long afternoon. Poor Chelsea was probably ready to pull her hair out...me, I'm used to it:)
Infusion #79, today, two pokes. She took it like a champ! Plus I put a ton of numbing cream all over the area just in case this happens. Now she is watching Pinocchio, and eating carrots. Carrots only because she has already had a donut with sprinkles, string cheese, a cutie orange and green chips(aka sour cream and onion chips)it's 10am:)
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