Botox and then recast

Dr. Dabrowski thought we should try Botox to loosen Avery's leg muscles and then recast to try and get some good movement. The Botox was a nightmare. It was painful for her even though we put numbing cream on every location that she got injections. The needle was SUPER long. She was over my lap with her head down and I could just feel her crying. It made me sick! I cannot handle it when she is in pain. It was super quick and Grandma and mommy took her to Target afterwards and spoiled her rotten. I would like to say that I never want to go through that again but we just found out it will be happening again after the first of the year:( The goal is to get Botox then cast within the next couple day and continue with the serial casting for 4 weeks plus. She got her first set of casts, yes casts on both feet up to her knees on 9-22-14 and got them changed weekly for 4 weeks then went down to only having the right one casted for two more weeks. During this time Edgar recasted her for new AFO braces. LOTS OF RUNNING and lots of stress during this time. The casts can't get wet so baths are difficult and it was really rainy during this time too. The final cast just came off 11-12-14. Back to Dabrowski on 11-13-14 for him to tell us that her right foot is still not where is should be and be will have to do Botox again in January and recast that right foot again. This poor kiddo. It really doesn't phase her much though. She is a trooper and still tries to do everything she can!

her wheels for stability

taking off the first set

Edgar trying on new brace..purple butterflies of course