Infusions: #86, 8-28-14, #87, 9-10-14, #88, 10-23-14, #89, 10-7-14, #90, 10-21-14, #91, 11-5-14, #92 11-18-14

Writing this on 11-18-14, and I'm so behind on keeping this updated. Infusions have been going pretty smooth lately. We officially were done with the Lumizyme study on Nov. 5. Nothing much changes for us as far as infusions go. They will now get billed to insurance. It is possible we will have to pay a thousand or two for the rest of our deductible but that would be it..and that depends on how it is billed and we really don't have control over that. Avery has been doing half days of school on infusion days and that has been working great for her. She gets to see her friends then take a nap during infusion. We use lots of numbing cream to reduce the pain of starting the IV..but she is a champ! On Nov. 5 we also  got to meet Cortney, the nurse that will be taking over for Chelsea :( in mid December. We are so, so sad to see Chelsea go but completely understand. She is expecting a baby in May and will be finishing school. I wonder if Chelsea should warn Cortney about becoming part of this crazy family ;)

playing during 9-10-14 infusion

her meds are in her backpack

snoozing on 10-7-14