92 was a normal infusion but was going to be Chelsea's last one:( OMG! Time has just flown by and we are on to new adventures with a new nurse. Chelsea is becoming a nurse practitioner and will be having a baby in May 2015. She introduced us to one of her friends, Cortney and she will be taking over. Infusion 93 Chelsea came part of the time to show Cortney the "ropes." Infusion 94 and 95 were pretty uneventful and we were just getting to know Miss Cortney. Infusion 96 the headaches started. At first we didn't know it was a reaction to her meds but they continued. Infusion 97, another headache..this time with vomiting. Now we were really starting to worry but thought...well..maybe it's a coincidence? Infusion 98 another headache and a call to genetics because this was positively a reaction. Talked to Dr. Stockton and there is a protocol to follow when this happens, a long list of things to try and do. We wanted to start simple, obviously to keep things as normal as possible for everyone involved. We decided to start by just giving her Ibuprofen 30 minutes into the infusion and increasing the amount of Benadryl we give her(we give Benadryl and Tylenol before every infusion, always have)and THIS WORKED! No headache! Phew!!! Avery has been starting to fight the infusions a little more, more crying, more resisting, more questions and the list goes on. We think it is a combination of things starting with her age, her school friends asking questions, a new nurse etc. So we are going infusion by infusion and doing our best to make her understand.
Chelsea's last day. She gave Avery a beautiful necklace! She is one AMAZING person!
during infuion
bribing her with Doritos..no shame!
after one of her headaches
she was dreading her infusion, she has numbing cream on here
Miss Cortney playing with Avery. We were blessed with Cortney as well!
infusion 99...checking her heart:)
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