Avery had another wonderful day at therapy. Today was Physical Therapy and Shawn is the usual person that helps Avery. Today Shawn had jury duty so Avery got to "play" with Mary, the owner of Kids in Motion! Mary was impressed. She said she seems to be hitting all of her goals! She really, really wants Avery to crawl. So our goal is to pract...ice..practice...practice! She also had Avery sitting in a low to the ground chair and with minimal help Avery pulled herself up to standing and leaned on her elbows on a low table. AWESOME! I literally was so happy I cried(just a little) :) Way to go baby girl!
Also, Avery's first ERT infusion will be this Thursday at 9:30 am. We have to be there at 9. Suj informed us that the 1st one could take a little longer as there will be lots of questions and some additinal labs that need to be done. 9 am...so maybe we can miss some morning traffic. We will bring our camping gear...because it sounds like we will be there ALL day. We will be sure to bring lots of snacks for Avery...who am I kidding..for Mommy too! :)
Not sure on Wade's feelings regarding the 1st ERT. I am really nervous and super excited for Avery!
Also, Avery's first ERT infusion will be this Thursday at 9:30 am. We have to be there at 9. Suj informed us that the 1st one could take a little longer as there will be lots of questions and some additinal labs that need to be done. 9 am...so maybe we can miss some morning traffic. We will bring our camping gear...because it sounds like we will be there ALL day. We will be sure to bring lots of snacks for Avery...who am I kidding..for Mommy too! :)
Not sure on Wade's feelings regarding the 1st ERT. I am really nervous and super excited for Avery!
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