Ballerina Avery

Ballerina Avery

Friday, August 19, 2011

8-19-11

Infusion #7. Today was a rough one. They had a hard time getting an IV started.  The meds were ready to go before Avery was. Jessica tried the first one and it didn't work. Lindsay tried twice and got it on the second try. :(  Avery screamed for an hour while they were trying to get the IV started. I was sick to my stomach. Needless to say, once the IV was started Avery fell asleep for about hour and a half or more. That was so nice.  Less time for us to find a way to entertain her. Avery is still complaining "Ouchie" ...so sad. We talked to Dr. Stockton and he thinks it is about time to put a port in.  We knew the time was gonna come...that doesn't mean we are exactly excited about it.  She has to be put under for that procedure. While they do the port she will get tubes in her ears and adenoids removed if needed. Dr. Stockton pointed us in the direction of an ENT at Children's.  I will contact them next week and make an appointment. In the meantime the doctors will try to coordinate to do everything at once. Our goal is to get the tubes in her ears before winter...cold and flu season. That means the port will be in before winter too.  All the nurses tell us how great a port is. Yeah, great for them to push drugs...but it is not their child getting it put in. It will be fine and be less painful for Avery in the long run. 

4 comments:

  1. Sorry today wasn't easy.....at least it is over and the Myozyme is in her body doing good things to give her more strength and mobility. We'll focus on the positives!!! There are MANY!!

    ReplyDelete
  2. You are right! There are soooo mandy positives!

    ReplyDelete
  3. Even though I don't comment much, remember you are all in our prayers every day. Avery will do much better with the port in. It will be less traumatic on infusion days.

    ReplyDelete
  4. sorry, that last comment is from me. I'm not very good at this computer stuff!!!

    ReplyDelete