Infusion day #2. Things went a little better today. We didn't run into traffic and were there early. We decided this day (Fri) and Time(8:30)works really good for us! We were actually in registration at 8 and were upstairs in the infusion room by 8:15. Avery hated the IV again..but that is to be expected. She was really fussy and grumpy too...w...hich also is to be expected..I guess. We were done at 2ish and home by 3! NICE! Avery fell asleep before we got on 75 and is still sleeping. We are all really tired...with her being fussy and us getting up at 6 and none of us slept great last night...that is what happens I suppose. We asked about getting a port put in so we didn't have to go through the IV everytime. We misunderstood last time when they said they would only poke her 6 times...that is 6 times in one day to try to get the IV in. With Avery, so far they always get it on the first try. Dr. Stockton would like us to wait as long as possible to do the port....in hopes she gets stronger and her heart too. We all agree that is best. And since she doesn't do too bad getting the IV..considering! We will wait. SO all in all.. An OK day. Few tears from Miss Avery..and none from Mommy! Daddy is alway the rock for us all! If we could just get rid on the nerves things would be better. Maybe with time..but I doubt it. Very PROUD of our big girl for going through all this! I love her SOOOO much.
No comments:
Post a Comment