8-4-11

This week at therapy....She did great, of course!  After all weekend of saying..you're gonna walk for Shawn next week, right?  She cooperated with Shawn and did her walking. Brian also commented on how much she loves doing the obstacle course and does it for about a half hour out of an hour! Alisha just loves her more and more each week.  She says ...Avery is doing great.  Of course, Alisha gives Avery goldfish, so Avery will do anything for food!
Thursday was Avery's appt. with the physiatrist. Me, Avery and Shawn(her Physical Therapist)went. Dr. Dabrowski was awesome. He was super impressed with Avery. He expected her to be worse than she was/is. He thought she would be more wobbly than she was. He asked me if she could walk and I said no.  But did she prove me wrong...she walked with me in front of her holding her hands! AWESOME! It was real steps..not the usual stiff leg/knee steps. He also checked for reflexes and she had them!  HUGE DEAL.  Several doctors have spent several minutes trying to find a reflex in her legs and arms...and could never get a good one.  Dr. Dabrowski got a reflex in both legs and her right arm..and a slight one in her left arm.  What does this mean????.....THE ENZYME IS WORKING!  Let me say it again...the enzyme is working!  This Thursday was to date since we got the Pompe news, the best day of my life!!! More to come.......