Infusion #5...and no they are not getting easier for Mom...but I think Avery is getting more relaxed about it. We got there at our normal time..8a and were registered and upstairs to the infusion room by 815....only to wait about 2 hrs for the meds to arrive! AHHHHHH. The thing is..we have to be there and Avery has to be weighed(to know how much m...yozyme to give her..it goes by weight) in order for them to order the drug. And for whatever reason it took the nurses forever to get the show on the road. At any rate we were outta there by 2ish and home by 3. Wade and I caught a quick nap while Miss Avery Kay snoozed for about 3 hrs.
The infusion went ok. There was a new nurse that neither Wade or I were over impressed with....and when someone kinda rubs you the wrong way from the word go....well you know the rest! She did Avery's IV and didn't get it the first time. UGH! Avery was so great for the first one...only one big tear rolled down her cheek. She holds it in like such a big girl. So it could just be coincidence that the first one didn't work or operator error. I think if one of the regulars would have done it..it woulda worked! So second try..she got it, but not without tears and lots of crying. So Wade held her while I watched and held in my tears :( The rest of the day went fine. We just try to keep her entertained and fed :) Really looking forward to when we can do the infusions at home! That would be beyond AWESOME! Avery is doing great with LOTS of pulling herself up and crawling. I can't even believe the progress she is making. And it even makes me more happy when her big sis Mya is cheering her on. Mya says..Mom, we are so proud of Avery..right mom! I love them to pieces.
The infusion went ok. There was a new nurse that neither Wade or I were over impressed with....and when someone kinda rubs you the wrong way from the word go....well you know the rest! She did Avery's IV and didn't get it the first time. UGH! Avery was so great for the first one...only one big tear rolled down her cheek. She holds it in like such a big girl. So it could just be coincidence that the first one didn't work or operator error. I think if one of the regulars would have done it..it woulda worked! So second try..she got it, but not without tears and lots of crying. So Wade held her while I watched and held in my tears :( The rest of the day went fine. We just try to keep her entertained and fed :) Really looking forward to when we can do the infusions at home! That would be beyond AWESOME! Avery is doing great with LOTS of pulling herself up and crawling. I can't even believe the progress she is making. And it even makes me more happy when her big sis Mya is cheering her on. Mya says..Mom, we are so proud of Avery..right mom! I love them to pieces.
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